On Friday 8th April 2011 our darling son was diagnosed with Bilateral Retinoblastoma, a very rare childhood cancer and it blew our world apart. This blog will share his journey
Monday, 10 December 2012
Its beginning to feel just a little bit like Christmas
The wooden, eco-friendly, re-usable Advent calendars were brought out and filled with chocolate and whilst feeling in the Christmas spirit I decided to put up the tree and decorations.
Its either a job you love or hate and sometimes I feel both. But this year, I was bang in the mood so up the tree went.
And so the finished product.
I love just having the tree lights on at night time, it makes everything seem a bit more magical. I blitzed the santa shopping and just need to wrap it all if I can dare brave the cold going to the garage to get it all. Not much room for hiding things, especially from one 8yo who is seriously doubting the existence of Santa. His mind is too logical, like what is the point of toy shops if santa brings everything, why have I got rolls of wrapping paper if santa brings everything, and how can one person do everything and magic is just an illusion not reality.
Still the middle two are giddy with excitement, and Harry just trots around saying mismas.
Its going to be lovely, the kids will love their gifts, and danny will enjoy the chaos as he is not working this year and to top if off Harry doesnt have to go to Birmingham til the New Year. Simply perfect!
Saturday, 8 December 2012
Awol
I am very sorry I have not updated for an age. Everytime I sit down to do it, one of the angels demands my time and it goes out of the window.
Firstly, harry had a clear visit again, which was amazing. It means we do not have to go back until the new year so we can enjoy Christmas without the gloom of new tumors hanging over us. This makes it 4 consecutive visits now, and whilst not being complacent, am quietly cautiously optimistic that when harry turns the magical 2 in January and when retina growth starts to slow down that we may have turned round a corner to winning this fight.
Mind you, there are plenty of families who thought the same and relapse, regrowth and new growth started so thats why I am not being complacent.
Madeleine is much better after a nasty ear infection which ended up perforating her eardrum. It must have been agony for her, and I wasnt impressed with school leaving her to cry assuming she was just missing mummy who was in Birmingham with harry.
I have to keep it dry for 6 wks whilst it heals. That will be fun washing her hair. She could also get recurrent ear infections too. Grr winter bugs.
Xmas is just round the corner. My cards are written, my tree and decorations are up (will post a pic separately) just need to sort the mountain of gifts I need to get. You can bet that as I have left it so late it will he sold out locally so I will have to trek out to the toy superstore. Oh well it wouldnt be Christmas without a little stress.