Saturday, 21 July 2012

One step back

Harry has been to birmingham and we were hoping he would make it a hat trick for a clear visit, where nothing new or regrowth happens.
As usual, nothing went completely to plan, firstly they brought his appt forward from a 6wks break, the taxi hadn't been booked and I had a nightmare sorting childcare so again I was going alone.
The taxi turned up on time, amazingly and we had quite a good run down. We were put into a matchbox sized room with no cot. No surprise there. I decided to venture into the town centre to find something to eat and feed Harry. He yelled non-stop all the way in so I grabbed a sandwich and decided to go back to our matchbox to eat. Harry yelled all the way back. I did a bit of furniture rearranging to make some space for his cot and for him to play resulting in some furniture on top of the spare bed.
Anyway friday morning dawned and off we went to the hospital and I saw one magpie and as my hands were full I couldn't salute it in time. Tutting to myself I carried on, but it must have been a sign. Harry was second down and when he's not out after 20mins you know alls not clear. Up to now his right eye has been clear since january and his left has been a bit hit and miss but has been clear for the last 2 visits hence us hoping this visit would make it a hat trick for clear visits.
So you go into the room and wait for the consultant. In he saunts and tells you his findings. No hat trick, they found a new growth, grr pesky left eye. But no its the right eye, the not-being-naughty-for-six-months eye. This hit me for six, was so not expecting to hear this. It would have been a little more acceptable had it been his left eye as this has misbehaved before. So now I am left wondering if it's just a blip or is it the start of problems, his right eye has been completely stable till now, and its his right he sees what little he sees the next few weeks till his next eua will be torture. One part of me is glad they didn't leave it 6wks now, how big could it have grown in those extra 2wks, at least they could laser it now.
Grr cancer leave Harry alone!

Sunday, 8 July 2012

If I could turn back time. ..

Well july has dawned and frankly it has been rubbish so far. To start with my waterproof coat is not, having had to sweep a swimming pool out of my garage whilst its poured an ocean from the sky and so I have been soaked to the skin loads of time.
I am still without a tumbler dryer which is a little irksome, but am now without my washer which is an absolute nightmare. I have ordered the spare part and I think its being delivered by snail mail. The helpful guy suggested I handwash durrrrr how do I spin it and it's not the weather for drip drying, zero out of ten for his customer service. Thank heavens for my mums, hope the extra burden with my washing doesn't overload hers!
My poor sister has got a poorly car, and not even an arm or leg will fix it, and even our superstar car fixer dad can't do this one.

And to really nark me off, the luscious 6wks break between eua's I was looking foward to has gone on the Kybosh and Harry will be back with only a 4 and a bit wk break. Dan can't get leave, its bang on last day of school so I have a bit of a childcare issue, it means my poor dad will need to take a days leave something I was trying to avoid and again I will be going alone. I am sure Harry will get his hat trick with another clear visit.

One good thing has happened though, a twitmate has just had radical surgery to remove most of his liver and other tumors to give him a fighting chance, he'd previously been told it was terminal but a second opinion suggested not and hopefully he's on his road to recovery, get well soon Stuart xx

Off to find some choccy, but here's a pic of William with his new glasses, and 4 days later he's been really good keeping them on

Wednesday, 4 July 2012

We're still here

Will write a nice long update tonight, sorry I've been absent see you laters x