Monday 15 September 2014

A busy week

Well Monday dawned and all across the village several whoopee doo yells could be heard. Yes it was back to school day. It was also harry's first full day at preschool. He does a full day on a Monday, weds and Fri morning. So as you can see from the pic, they were all dressed in their uniforms and off they went. Back to normality, back to routine and back to not being able to empty the kitchen cupboards in a flash.
I miss them terribly, but I have to be honest and say I am mighty glad they are back so they can stop eating not stop. It was utter bliss not to hear the words "I'm starving" constantly.

Well Monday for harry went quite well. He was tired but seemed happy. Come to drop him off on Wednesday and he sobbed and begged to stay with mummy. Hmm, don't like this. He usually trots in Ok. He was peeled off me, but was fine after a few minutes after I'd left. He was the same on Friday, and even worse today. It's heartbreaking at the time but to give in will make it even harder next time. Perseverance is the key here. As my mum always told me "you'll enjoy it when you get there". Still heartbreaking though.

Matthew went off to scout camp on Friday for the first time. He had a whale of a time, was filthy and shattered and was pleased as punch with his walking stick he'd whittled and carved. Hmm don't tell daddy but he'd borrowed his grandads penknife and carved his stick himself. Can just hear the Omg from Mr riley. Well what he doesn't know won't hurt him as they say.

And finally a little giggle on Williams behalf. His homework this week was to fill in an information sheet about himself, drawing pictures of his family, saying what he likes etc. Well in typical William fashion he demanded to do it all by himself and off he went. His spelling was amazing considering he was only 5 a few weeks ago but what me laugh was the question that asked "is there anything that concerns you?" and he wrote beautifully "going upside down"

Not sure where that fits into the curriculum.

Have great week x

Sunday 7 September 2014

A little piece of history

Today, something magical happened and Matthew and madeleine witnessed it first hand with their grandad and biggest cousin. They saw 2 lancaster bombers fly past. They were amazed and in awe, though Matthew was a little disappointed they didn't drop bouncing bombs.

Madeleine, when they were first pointed out in the distance, thought they were birds. She wanted to know if the pilots could hear anything as they were so noisy.

I sadly didn't see them, but I heard them all the way in brookhouse and have seen fabulous video clips on Facebook. We will probably never see 2 fly together again and I'm so glad my children saw them. A part of history will never be forgotten.

Saturday 6 September 2014

HARRY IS GOING GOLD

September....  
It's the start of the new school year...
It heralds the end of summer....
It's been a year since I posted properly...
And it's the month to raise awareness for childhood cancer.

A few years ago I probably never paid attention to media about childhood cancer awareness month. I had 3 beautiful children and was pregnant with Harry. Cancer was something that happened to someone else. Right??? Wrong!!!

Fast forward to January 2011 and harry entered the world. Beautiful and perfect and for a while life was good. I must have been walking round with my eyes shut, as I didn't see the massive sledgehammer swing back and slam into me, knocking me for six and I still am trying to find my feet. All of a sudden we were moved from the safety of being in the elite group of people where cancer doesn't exist into the dark gloomy group of a family of a child with cancer.
Instead of talking about night feeds, sitting up, teething the usual baby banter.. we were discussing hospital appointments,  chemotherapy, fevers and blood transfusions. We watched helplessly as toxic chemo drugs were pumped into our tiny baby's body, as he grew weaker and needed tube feeding, as he fought off 2 deadly bouts of septicaemia, as we pinned him down for the numerous general anaesthetics.

Had I been a bit more cancer aware it might have been a little easier to bear. Had I taken more notice of those media campaigns it might have helped.

So it is with hindsight and the terrible journey we have been travelling on since Apr 2011 that I can stand up and shout out about raising awareness for childhood cancer. Too many children are taken by angels because of cancer, and although it is not a guarantee early detection can only give them a better chance to fight.
If only more people knew the signs and acted on them then even if just one extra child wins their fight then raising awareness is absolutely the right thing to do.

We don't want to scare people, we don't want them to think every illness is something sinister but just knowing the signs and trusting their instinct may be the difference.

So for September,  Facebook and Twitter and any other social media is going to be flooded with messages from people like me. I have pinned gold ribbon to a beautiful picture of harry. He is beaming, but his eyes betray his condition. He has grown up with cancer it is all he has known. He has never known what it is like to have perfect vision, he will for the rest of his life be monitored for secondary cancers, heightened risk because of the faulty gene he has and because of the chemo we gave him to save his life (ironic isn't it) but he is happy.

He has grown into the strongest bravest boy I know, when you feel a bit sorry for yourself he makes you pull yourself together and think why, when after all he has been through. He bears no grudges and still says he loves me. He has taught me to live for today, and worry about tomorrow when it comes.

Childhood cancer receives little funding for finding cures compared to adult cancers. Many adult cancers are lifestyle related, but yet little is known why some childhood cancers happen. After all, children are just born,  they haven't smoked or been in the sun too long etc but we need to change our thinking. Children are the future, and surely savings a child's life so they can grow into an adult to keep population going is only a good thing, so that's why keeping childhood cancer to the forefront is important.

Raising awareness can save lives. Don't think it will never happen to you, I did and how wrong was I.

Thursday 10 July 2014

On our way to brum

Harry is so taken with motorway travel, he falls asleep everytime. We are on our way to Birmingham for the dreaded Eua tomorrow. Things have been clear and dandy for quite a while so not expecting any surprises but we will not be complacent. Hated saying bye to the others, it's only overnight but I still miss the little imps. Update with news tomorrow x

Saturday 8 March 2014

Be right back......

I sincerely and heartily promise that I will do a long update tonight when Mr R is in work. I cannot believe 6mth has passed. My blogger app has changed so much I think I need a lesson in how to use it!! It didn't help that little fingers had sent it to phone hideout so I guess out of sight out of mind lol so see you later xx