Well the news wasn't exactly what we wanted to hear, it was in fact the good the bad and the ugly.
The good, his existing tumors are completely inactive, hooray,
the bad, there were 8 new seedling tumors (these grow into the whacking great big nasty ones if untreated).They were on the outer rims of his retinas which meant he was in theatre ages. 75mins as opposed to the 30mins it usually is. They were all lasered, hopefully to annhialation. But it was still new growth. WE WANTED NO NEW GROWTH. They seemed a little on edge to me, despite them saying new seedlings are expected. They want to see him in 3weeks. His left eye is deffo worse than his right, and they want a sight test each time we go down now and will look to doing some patching to stop his left eye switching off. Maybe William will be happy wearing his when he gets them if he sees Harry wearing one.
And now for the ugly .... his RB nurse har har. She's actually lovely. Its BRB thats ugly. (Bilateral Retinoblastoma)
I need to laugh, because right now I'm not feeling too great. Its so so hard sitting waiting then being told your son's nasty cancer hasnt gone away, and they need to keep an eye on him. They mentioned other treatments they could look into if need be, and havent ruled out he may need more chemo, god forbid.
I HATE YOU BRB AND YOU CAN JOLLY WELL SOD OFF AND LEAVE MY BABBA ALONE.
3 wks time, we will get 'no new growth' because nothing else will do.
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ReplyDeleteI'll come with you in 3 weeks time so those tumours better stay away or they'll have me to deal with.
NB. BRB really makes me want to use a right lot of bad swear words.