Harry's journey

On Friday 8th April 2011 our darling son was diagnosed with Bilateral Retinoblastoma, a very rare childhood cancer and it blew our world apart. This blog will share his journey

Thursday, 10 July 2014

On our way to brum

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Harry is so taken with motorway travel, he falls asleep everytime. We are on our way to Birmingham for the dreaded Eua tomorrow. Things have...

Saturday, 8 March 2014

Be right back......

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I sincerely and heartily promise that I will do a long update tonight when Mr R is in work. I cannot believe 6mth has passed. My blogger app...

Saturday, 7 September 2013

Champions

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I use the blog mainly to keep an update on Harry's journey and what a superstar he is with his fight to overcome the evil 'c' wo...

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Wednesday, 28 August 2013

School holidays love em or hate em....

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It has been debated for as long as I've been aware of what the '6 week holiday' is, that 6 weeks is just far too long. Those tha...

Wednesday, 14 August 2013

We just love good news

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And we got some....... Harry had his latest EUA on Monday, and I am delighted to report he is still stable. That is almost 12months of sta...

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Tuesday, 6 August 2013

4 is the new 3!

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Well it's been 4 years growing the little baby to the bundle of mischief and he's been desperate to get to today. William turned 4 ...

1 comment:

Thursday, 1 August 2013

Stillbirth... why is it so taboo?

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Approximately 3 years ago I came across a wonderful group of people all with babies due at the same time Harry was due. We met on a chat for...

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About Me

matilda mark2: I am a short and slightly (but soon to be put right) overweight thirty something. I have caught the blogging bug from my even shorter nearer forty sister. She is right in saying that mum is always right and why oh why do I catch my self saying the very same things I hated hearing as a child. I have travelled the world a bit (well if you call europe and the states the world) and in my short life have been married, divorced and finally settled down with my loverly Danny and we have 4 unbelievably gorgeous children. I used to be a Bank Manager, but got out before Banking went bad and I am now a FTM (full time mum)and it is the best full time job in the world. My big but shorter sister is my best friend and has shared so much with me, mainly the pains of childbirth and the angst of poor Harry's predicament. I hope I can repay the favour one day

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